Caring for someone with IBD

Information for parents

If your child has IBD, it can be a frightening and frustrating time. Some of the links below are great places to seek information from like-minded people and organisations that support kids and teens with IBD.

About IBD in children

Sydney Children’s Hospital Randwick has information about IBD in general and the IBD clinic at the hospital.

Royal Children’s Hospital Melbourne has information specific to ulcerative colitis and their departments.

Royal Children’s Hospital Melbourne has information specific to Crohn’s disease and their departments.

Get connected

It can be heart-breaking watching your child suffer through IBD. Get inspired by kids with IBD at empoweredbykids.com. It’s a site where parents celebrate the strength of their kids through adversity, giving them confidence that better days are ahead.

Transitioning care

Adolescent transition is an important process for you as a parent/carer to go through as you encourage your child to look after their own health and become independent. Read more at The Royal Children’s Hospital.

Information for your kids

Crohn's & Colitis Australia has Youth Camps for kids with IBD to have a great time away with other kids who understand what they are going through.

Crohn’s and Colitis UK has a section on their site for Young People aged 16–25 with IBD. There’s information, guides and concerns to browse. Please note, some medications may not be available in Australia and there are differences in eligibility for medications between Australia and the UK.

myIBD is an app for young people to take control of their symptom reporting by regularly recording their symptoms. It’s available on the AppStore. Please note, some medications may not be available in Australia and there are differences in eligibility for medications between Australia and Canada.

Parents/carers may also want to provide the school with resources. Support from the school could help a child with IBD thrive in the classroom and minimise the impact of their condition on their school experience. Crohn’s and Colitis Australia has put together a guide for primary, secondary, and tertiary educators, and the Canadian Digestive Health Foundation has also prepared a teacher resource.